u/Great_Ad9835

Posting this here in case it helps anyone else. I’ve had erythromelalgia for about 2 years. I also have lupus, so I suspect it’s secondary to that.

I’ve been taking a high dose of oxcarbazapine because it’s the only thing that helps. I’d tried gabapentin, Lyrica, and ketamine lotion, but they didn’t do much.

Recently, I decided to try low-dose tirzepatide for lupus. I found a random online doctor/pharmacy that specialized in off-label uses.

I’ve noticed some reduction in joint pain, but the pleasant surprise has been a dramatic improvement in my erythromelalgia. I’ve been able to reduce the oxcarb down to a lower dose and feel a lot better.

Hope this helps someone else!