u/Grrrrr_Arrrrrgh

▲ 144 r/POTS

What’s your go-to guilty pleasure high sodium food?

Mine is an Arby’s sandwich.

Don’t judge me…

I looked it up - along with 23g of protein, it has over 1200mg of sodium.

Not to mention that I deal with a lot of GI issues and I have never felt poorly after eating one of these. There are few foods I can say that about.

Anyways… what’s your guilty pleasure food of choice?

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u/Grrrrr_Arrrrrgh — 10 days ago
▲ 27 r/manx

Should I get her a cat tree?

This is Penelope aka Potato aka The Ashen Rumpus.

She was very shy and skittish when we got her over a year ago. We had a cat tree from our previous cat that she ignored. At the time she hardly went into the room where it was. When we moved the cat tree got damaged so we didn’t bother replacing it since she hadn’t shown an interest.

She’s still a bit skittish but much less shy now, as least with our household. She zips around, climbs onto the back of the sofa to hang out with me in the evening, hops up on my desk while I’m working (courtesy of the ottoman I put next to it, for easy access). She completely ignores the scratching post I got her that looks like a mushroom, though 🙄. I can’t decide if it’s worth getting another cat tree. They’re more money than I want to spend if she’s just going to ignore it. Not to mention what am I going to do with it if it sits unused?

Thoughts? Does anyone have a Manx that loves a cat tree?

P.S. I’m certain the old cat tree having another cat’s scent on it was not a factor. Like many Manx, the Potato is extremely social with other animals, both dogs and cats. There are other items I’m sure had our other cat’s scent that she was chill with.

u/Grrrrr_Arrrrrgh — 10 days ago
▲ 6 r/MCAS

Does anyone have a scar that gets inflamed during a flare?

I had surgery about 2.5 years ago and now whenever I eat a trigger food or find myself in a flare, one of the three scars from that surgery gets puffy, inflamed, and itchy, almost like a hive. It's always the same scar and the scar is so well healed that it's normally pretty invisible.

Does anyone else experience something like this? I've been calling it my early warning signal.

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u/Grrrrr_Arrrrrgh — 1 month ago

I'm really hoping for chaotic results on my MRI

Is anyone else tired of talking to your doctor about your crippling fatigue or chronic pain only to be told, "Well, your labs look normal..."??

I finally got a neurology referral and she seems to actually be taking me seriously regarding my headaches and back/neck pain. She fully agrees Xrays are useless and is sending me for some MRIs today.

I don't want the MRIs to be normal. I want them to find something wrong so we can actually address it and possibly improve my quality of life.

I have Marfans, so there's up to 92% chance from that alone that I have dural ectasia. It would explain a lot of my back pain, headaches, etc.

If I have a diagnosis, then they can treat it or at least improve the symptoms.

So yeah... Here's hoping that my MRI shows something interesting 🤞🏻

Wish me abnormal results!

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u/Grrrrr_Arrrrrgh — 3 months ago

This community seems really lovely

Hi everyone!

I just discovered this sub and I just wanted to say how lovely this community seems.

I don't have EDS, but another connective tissue disorder called Marfan Syndrome (MFS). I've experienced symptoms related to my hypermobility and musculoskeletal issues most of my life and have now added GI into the mix 🙄

The Marfan sub is mostly a bunch of dudes discussing their body image issues and it just isn't a place that has ever felt welcoming to women or a place where much is discussed beyond body image and the doom and gloom of heart issues.

As I've continued to do more research into MFS, I've come to learn how much overlap in symptoms there is with EDS. Reading through posts here where y'all are discussing the chronic, daily experience of living with a connective tissue disorder... and doing so with such humor and camaraderie... It's just wonderful.

I'm just a girl, standing in front of a sub full of fellow individuals with connective tissue disorders, asking if I can hang out.

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u/Grrrrr_Arrrrrgh — 3 months ago