Ive had joint pain and fatigue for years. I finally got diagnosed with Dysautonomia, I have a bunch of other health issues, and this year at the optometrist, opthamologist, and dentist, all said I have sjogrens based on my eyes and mouth issues/decay/etc. They all feel i must be seronegative cause I have tested my ana twice and both times it was positive, but rhumatology tests me for lupus and RA after and once all that comes back negative they basically drop me.
So now, with me managing my mouth issues, why in the world does all the dry mouth aids make food so gross. Im struggling to eat because everything is just blech now. I cant eat some of my favorite snacks that help my Dysautonomia cause its just ash in my mouth. Is this just how it goes? Cause im also AuDHD so texture is a huge thing for me and as a former chef, I want my food to taste like it should. This is so sad.
Sjogrens triggers my Dysautonomia, vice versa, and im exhausted. I get bursts of energy but I get wiped out so easily now. This has destroyed my quality of life--i truly hope disability approves me cause idk how I could ever go back to work with how much I tanked in the last year.