u/Halifaxboy06

▲ 20 r/HeadandNeckCancer+1 crossposts

*TONGUE CANCER / NECK DISSECTION JOURNEY**

***TONGUE CANCER / NECK DISSECTION JOURNEY**

Sharing my entire experience from soup to nuts. Hope it helps you all.

Profile:

52 male, never smoked, no tobacco, no alcohol

Jan-April 2026:

Symptoms: non-healing traumatic ulcer due to biting of tongue in the middle of night

-self medication, like oral gels, salt water rinse etc

-avoided oral maxillofacial consultant due to dental phobia and excessive gagging.

End April 2026

Biopsy Diagnosis: Moderately differentiated invasive squamous cell carcinoma" right lateral tongue.

May 2026:

CT, MRI & PET shows no spread to lymph nodes.

Mid June 2026:

Surgery Summary: 15 hours surgery / Between Partial & hemi-glossectomy with reconstruction using submental island flap below chin area) + Neck Dissection removing 45 lymph nodes.

Post Surgery Histopathology Report:-

-Cancer staged: pT1, pN0 / Tumor less or equal to 2cm with depth invasion less or equal to 5mm

-no spread to distance organs or lymph nodes

Foreign objects in Body:-

-Tracheostomy (removed on day 7, post surgery)

-Two drains in neck (removed on day 12, post surgery)

-PEG tube in stomach (to be removed soon)

Hospital stay:

ICU + ward. Total 14 days

First 06 days:-

-Food and medicines through PEG tube

-Excessive saliva drooling 24/7.

-was allowed and able to walk to washroom

-tongue swollen and protruding out of mouth

-entire face was falky, skin peeling and tight

on 7th Day & onwards:-

Speaking clearly but slowly, eating soft to hard food.

-Saliva drooling stopped once started drinking and eating

Current update- July 5th, 2026

-Eating from front and left side as right side has a flap which i still not used to eating but very manageable.

-Taste is normal

-Chewing takes time due to neck stiffness.

-Neck stiffness persists, but can easily rotate head

-Looking up for longer period is not easy and strains my neck but manageable.

-No shoulder pain

-from time to time tiredness and little dizziness sets in but manageable.

-Not used PEG tube since 20 days and soon to be removed. PEG tube discomfort/cramps off and on but soon to be removed now.

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u/Halifaxboy06 — 19 hours ago