u/HappyCareer2098

I need advice! My endo clearly has never treated sai (said there is no evidence-based info to support updosing based on symptoms) and I have a referral in the works to a multispecialty clinic near me.

But I has all the questions. Today, I'm really just wondering what y'all are using as a metric to know you can start to taper. I've been looking at blood tests and symptoms lining up over the years and have been on the decline since at least 2022. Now I was just diagnosed almost three weeks ago, and JUST got the endo to up my dose after the er trip this weekend avoided a crisis.

How good do you get to feeling before you taper? One post I saw mentioned tapering until they feel fuzzy again and taking a day or two to adjust; my question is do I stay on the higher dose until the dizzy goes away? WILL it go away? It feels like I've been fuzzy forever. Part of me is afraid to even imagine getting to normal again, I don't know how!

We had a low country boil (crawfish boil) yesterday and so I got the house ready and my husband snd i cleaned up the porch. My daughter came home from college and we all ate and had fun,I had 3 drinks over like 12 hours and also ate a candy bar, which I have been avoiding.

Basically, I let myself relax and enjoy the boil and it was really fun. I went to sleep fine, then woke up at 4 to run in and puke. Do y'all think yesterday was enough stress to cause today? I seriously apologize if this is stupid, but I legit got diagnosed 2 weeks ago and I'm learning. I did double my dose this morning and go back to bed. Do y'all updose all day when this happens?

Thanks in advance!

Holy hell. Okay, diagnosed a week ago, this is day 7 on HC. Taking 10 on waking, then 5, then 5.

TLDR: I can't handle the temper spikes. I need someone to tell me I'm not going to feel like a raging bitch forever and my family probably does love me even if no one bothered to research any of what's happening to me.

Oh my god; i feel like a crazy person. I have never been so reactive as I have the past few months. I wound up in the hospital in February with hyponatremia, which led to an empty sella finding, 3 mm cerebellar tonsillar ectopia, and a referral to endo for stim test. Stim test was 11.5 cortisol basal, undetected acth basal, cortisol rose to 24.5 on stimulating.

Okay. So now we're waiting on lumbar puncture fir IH because I'm still super dizzy. Bad lightheadedness on standing or changing elevation at all, also when I get angry or stressed or strain or do anything lol. I've noticed windows where I almost feel normal. About an hour after I take my dose for about 90 - 120 minutes I'm mostly clear, just a little antsy because I'm kinda wired. Then it drops, the fatigue and brain fog start and just get worse until my next dose.

Yesterday I was doing pretty good, I was cutting quilt squares at my coffee table with a history show. Then my husband summoned our teenager to the living room so we could hang out for a bit, then he had her come help with the lawn. When he was telling her to come out (she was arguing of course), he was like, Come on, outside. You, too, let's go." And pointed at me too, then closed the door.

Yall I was insta-livid. Raging. I CANNOT HANDLE THIS. How am I supposed to wife and mom like this?! His comment was insensitive, yeah, and I already cussed him out for it because I was so pissed. He's been so good during all this, i can't expect him to never get frustrated.

I'm also furious he obviously has done no research, because otherwise he would know that's a hurtful thing to say right now. I'm trying so hard to not just sit and stew on this. Not to mention that my kids AND husband seem to think this is like a cold. My husband even said, "Oh, I thought you'd take a pill and start to feel better."

Yall I'm hurt he hadn't looked anything up. He researches EVERYTHING online, why not me? We've been together almost 20 years. I'm feeling like I'm a dumb ass and he gives zero shits about me.

Do we ever get to feel good again? I'm really having a rough time seeing the goal here, much less reaching for it. I feel like a damn princess, just over here all "I must lie down, I'm feeling faint."

Fucking gag.