u/Historical-Bet8890

I tried AFO’s for the first time this week! It was such an amazing experience. I still have limited dorsiflexion but I’ve always struggled with it. As the CMT progressed, my tripping has gotten worse but I can still get through most of my walking that I need to complete.

Walking with the AFOs made it feel like my feet were flying!

I wanted to post to share some hope of getting some quality of life improvement!

Hi! I’m currently in between neurologists and hoping this community can help!

I have CMT1C with numbness and tingling mostly focused in my feet. Some days I notice that the numbness is worse in my right foot for a day or two then goes back to the baseline. I needed to taper off of gabapentin recently and my GP thinks that could be causing the worsening symptoms.

Does this happen to anyone else? Has anyone had this experience when tapering off gabapentin?

Any advice you’ve received about this?