I am eight days in to my six month mFOLFIRINOX schedule and was told that the Oxi is cumulative in the body. At what point does peripheral neuropathy show up in general? I want it removed from my chemo regimen before my fingers go numb. This is all terrible enough without CIPN.
I (M, 54, 140lbs) was diagnosed Stage 4 just a month ago with minor Mets to liver. Started mFOLFORINOX one week ago and am slowly regaining strength.
My major issue is that I’m so malnourished. Even with Creon or ZenPep, 100% of whatever I eat comes out the back end in liquid form within max 90 minutes, sometimes as quickly as 30 minutes.
I’m afraid that I’m going to starve to death. Nothing stays in my body regardless of Imodium. I did get prescribed Lomotil to help, and that should get filled today. I have lost over 40 pounds since January.
What should I do or expect from here? I’m going in today for labs and extra fluids but fear that it’s not the tumor that will take me out. Will I need TPN? Long hospital stay? Give up sooner than later?