I mean, my life revolves it, BUT when I get the same cold everyone else in the house gets, or a get a sunburn, or anything else like this, and then I take twice as long to recover as everyone else and get brain fog and joint pain and fatigue and a fever (that no one else got as a symptom), I’m always like, “damn! Why am I so fucking sick?”
….
“Oh….
Wait…
I have lupus.”
I’ve been diagnosed since the fall of 2024, and my lupus treatment is literally central to my life, but I always go back to the default setting of “why am I so much more tired and unwell than everyone around me in the same conditions?”
Maybe it’s because I was diagnosed after 40 after over 15 years of begging doctors to run any autoimmune panel blood work on me and being told I was “young a healthy.”
Any other super late diagnosed folx (symptoms since puberty, diagnosed with lupus at 41, and the autoimmune and genetic disorder diagnoses have hit fast and heavy in the past couple of years) struggle with this?
At what point will I remember that this is my body and stop wondering why I am so different from the people around me?