Im running out of options
Hi I have been on the same pain management for over 10 years. I never missed an appointment I never failed a drug test or pill count and I never asked for more. My doctor retired and his partner took over. He hasn't been my doctor for quite a year and hes retiring in October. The new doctor is forcefully weaning me off of my pain medicine with no reason and no alternatives.i have tried to find a new doctor or a pain management clinic.i havent found one doctor that will take me and only one pain management clinic. The pain management clinic wants $3000. To start and $300. An hr. They do not take insurance. I lied I guess, my doctor tells me to take ibprofen and to get medical marijuana. Im alletgic to acetaminophen, insurance doesnt pay for medical marijuana plus it doesnt help me much. Im not supposed to take ibprofen for a couple of reasons. I had a cologuard test come back positive for colon cancer I have bleeding and I have a kidney disease that has left me with only one functioning kidney. I have several health issues. The first is the kidney disease. Polycystic nephritis. It causes cyst to form on my kidneys and when they burst it hurts like hell. I have adhesions that have caused me to have many surgeries for intestinal blockages. Ive had so many I have developed an umbilical hernia and I have no belly button. I have had 4 surgeons tell me they wouldnt touch me and that I most likely wont make it through another surgery. I was set to have hernia fixed but it was canceled because of adhesions. This happened because I had a hysterectomy and the doctor took the staples out the next day. I got a terrible infection. I had to be cut hip to hip and left open to heal from the inside out. I have endometrosis, fibromyalgia I have 2 slipped disk and a collapsed disk and bone spurs on my spine. I also have a tumor that is growing on my lower back. Nobody will even pay attention to it. It started out the size of a grape , 6 yrs ago I had a cat scan and it was the size of an extra large egg. Ive been told its a muscle strain and its not causing any pain. It takes me to my knees at least once a day and wajes me up almost every single night. I get to sleep around midnight by 2:30 a.m. im up for the rest of the day. Im exhausted. . My left knee is bone on bone with a large bakers cyst.my thyroid doesnt work. Im on medication but it doesnt seem to do anything.I feel the same, all my symptoms are the same. All test come back ok according to my doctor. I put my age ( 63 ) and all my issues in AI and ask Google. They both seem to think I should be bed ridden and crying in pain all the time. I was and did until my old doctor decided to be human and give me a quality of life I never thought id have again. Now its going to be gone once again. Ive already had to rehome my parrots, and take out my flower beds. Im not quite ready to give up my house but I think thats coming. My flower beds were something ive had for over 20 yrs. Every year my mother sister and I had a contest to see who had the best morning glories. While I was in and out of the hospital, in 5 yrs time I lost my 8 year old granddaughter, my son (granddaughters father ) My husband, my sister, my mother, mother in law, daughter in law and my aunt and uncle.my baby dog i had for 13 years. My parrots were my lifeline while going through all this loss. I gave them up so they could get what they deserved . I cry every single day several times a day. I miss them so much i dont know what to do . My new doctor wants to put me on cymbalta. Its more addictive harder to get off of and causes suicidal thoughts, tendencies. He finally got a clue about the ibprofen causing me to go on dialysis so he called in celebrex. Celebrex is an nsaid like ibprofen and it has bad side effects. When I have a partial blockage or fibromyalgia flares or a cyst my blood pressure goes crazy. Ive had to have nitro glycerin so as not to have a stroke. Im on a low dose blood pressure diuretic.ive been on it for many years. My new doctor told me to stop taking it because my potassium is low. I get that had to be taken care of but my blood pressure is already at stage 2 hypertension because of pain. I am lost. I have written to the president , vice president, senators , lawyers, news stations , governor , the DEA ,CDC, FDA, the medical board. NOTHING. Ive called every palliative care clinic. They only take cancer patients here. To me its should just be called hospice. On top of all this my pharmacy changed where they get their oxycodone. It isnt working for me. Well not only me lots of other people. I think it has to do with the binders they use. Im not sure. I talked to pharmacist he was kind of mean about it. The tech told me they changed where they get it from ..i asked my doctor to please write it for something else another milligram. He refused. So here I am taking most days over 4000 mgs of ibprofen a day for barely any relief. Im sorry this is so long and if I sound like a crybaby. I dont mean to , I just dont know what to do or where to go. Thank you for letting me vent. If you've read this before ive written it so many times my phone fills in almost every word. I apologize. I want everyone to know whats going on with pain patients. How we are treated. It should be against the law. The ladt doctor I waited to see for 6 months. I took my daughter with me. She was in tears and left the room. I didnt know where she went I was still getting yelled at by the doctor that didnt even know me. I told him that people are buying drugs off the street , drinking way more than should be allowed and committing suicide because of their pain. It was a statement and it was the truth. I know from first hand experience. It happened to someone I loved very very much. The doctor yelled at me and said I was threatening him that I would hurt myself if he didnt give me what I wanted. That is furthest from the truth. I know what suicide does to a family. I would never do that to my daughter , my grandkids . I love them too much to make them feel that kind of loss. Its bad enough to lose someone but then to blame yourself , question if you missed something or could have done something. I could never. Again he doesnt know me so .... Thank you