u/ILOVEMYDOGBUMI

My thoracic tarlov cysts are genuinely painful asf... they need to GET EVICTED, DAMNIT!

My thoracic tarlov cysts are genuinely painful asf... they need to GET EVICTED, DAMNIT!

ive had these assholes since 2018. they hurt hurt hurt especially after a long day of cleaning, mopping and vacuuming etc... my house is just dirty asf now lol dont have nearly as much stamina as I used to. I can hardly breathe by the end of a hard day because they get so irritated. everytime i go to the doctor my chief complaint is the thoracic pain but i dont think they really actually care since they feel like they cant do anything about it. i dont think theres anything i can actually do about them except just continuing to manage the pain. I dont know anyone who has painful thoracic cysts like me. usually theyre painless for most people. I'm sort of worried about what theyre going to do to my bones and nerves in the long term...

the pain is so SHARP. Why do u mfs have to literally STAB me everytime I breathe lmao! Its ridiculous. I did nothing to you, and you stab me?!?! These mfs need to be evicted so bad, im so serious, i have EDS too but my dislocations are nothing compared to these assholes, my quality of life would genuinely improve so much if they disappeared. and like why are they so big and gnarly too omfg just shoot me in the head already bruh lmao. There's a total of six, three on each side of t5 t6 t7 i think. something like that.

https://preview.redd.it/na5fqi8b262h1.jpg?width=512&format=pjpg&auto=webp&s=ccb53e2a8cea5bdb24f0decfe31f8f50a4e0e55f

https://preview.redd.it/wb8ob13b262h1.jpg?width=512&format=pjpg&auto=webp&s=c6ed0196ea46cc855457fc35e72f86b74f4e6f90

https://preview.redd.it/nku7zheb262h1.jpg?width=512&format=pjpg&auto=webp&s=ba5ec91c7891927de1e0cab1194eb7591740f7c2

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u/ILOVEMYDOGBUMI — 4 days ago
▲ 2 r/eds

im just straight up TIRED! of having EDS

I'm in a lot of pain due to a lot of different things but I think the worst is the fatigue. I'm just TIRED! I have no energy. I'm late on everything. I'm supposed to be doing stuff but I just don't have the energy. How do people survive this world?? My house is also a total mess

My friend's b'day gift is 2 months late now... I have so many emails and comments I never replied to... I'm also like supposed to be doing research on EDS and TNXB and I'm supposed to be publishing papers and doing networking and all that but FUCK I'm just TIRED asf. I literally don't want to do anything.

2 months ago I found out I have ventral brainstem compression and severe CCI and ever since then I've just been not doing anything at all except sit and think and ponder bc honestly everything just feels so overwhelming. Idk. I'm venting.

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u/ILOVEMYDOGBUMI — 4 days ago
▲ 17 r/eds

just wondering. Extra curious what your EDS is typed as and if u have any known mutations ....

me personally, i got DDD in my neck and a bunch of (painful) perineural cysts and also some bulged lumbar discs and skinny asf syrinx. my neck sucks the worse tho–one of my discs is also fissured and I have a little bit of ventral brainstem compression due to my c2-c0 being all funky. Not really sure what the chicken or the egg is in this situation — is it my mutation that makes my spine so lax and kinda fucked? are spinal manifestations common in eds? tnxb related EDS specifically? or is it a hypermobile-thing, where the hypermobility makes us more prone to causing internal damage? What is it that we're doing that causes this at a higher rate than other people? it's probably just a combination of a bunch of things but probably because of poor muscle usage and poor weight loading bc the body is so tense trying to keep the joints together, which causes stress on the discs. IDK. What do y'all think, lmao!

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u/ILOVEMYDOGBUMI — 26 days ago