u/Icy-Monitor-9838

▲ 4 r/UCTD+1 crossposts

I feel confused and lost

So I’ve only posted once before and appreciated all the advice! I got a second opinion like everyone suggested, which I’m so grateful for! Since getting a second opinion I’m feeling seen but also confused. For background I am 22F with a lot of overlapping health conditions. I have tons of stuff and feel like things are only getting worse. Last time I posted it was about my previous rheum and my results and the treatment I received.I had gotten a second opinion about 5 weeks after my previous appt and this rheum agreed my previous labs weren’t great. He got some more labs done just 6 weeks after my last and everything dramatically jumped. I went from a titer of 1:320- 1:1280. I started out with just concerns of connective tissue autoimmune/ lupus and only testing positive for chromatin antibodies to now also having high anti TPO antibodies. I had also had elevated IgG4 and it’s only going higher. Almost all of my immunoglobulins are elevated and higher the second set of labs. My c4 has been consistently borderline low which is also weird. Amongst all the other blood work I tested positive for the rheum was feeling more confused as my situation looks more complicated and overlapping. I saw this doctor when visiting family out of state so he was understanding and helpful and gave me a diagnosis of UCTD just to get my foot into the door and get a new rheum back home. I now have a new amazing rheum back home and I’m getting my third set of labs done including the avise test. I dont really know anyone who has gone through this before and I’m trying to figure this out on my own. I was wondering if anyone has had a similar situation or has also tested positive for multiple things at once and what that looked like. Any advice and experiences would be much appreciated!
Sorry for the shortened summary if you need more info lmk!
Thank you!!

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u/Icy-Monitor-9838 — 2 days ago