It's a struggle to find the right medication, the right neurology and to advocate for your child...
So my son had his first seizure TC when hi was 4 years old, the second seizure was 6 months after and the diagnosed him with Epilepsy and put him on Keppra. The EEG , 24h EEG and MRI were all normal. When we started Keppra after the first 2 weeks he said that he wanted to kill me and kill himself ( 4 years ol😢🥺) so we switched to Briviact 25mg immediately. He was fine on Briviact and he was seizure free for 2 years so his neurologist took him off medication ,what a relief I was so happy....
7 months later (this March)he had another seizure Tonic-Clonic and his neurologist told us to start Briviact 25mg EEG and 24h EEG are normal again, so I still don't know why he's having those seizures? And nobody can give me answers.
I don't know if anyone had experience this but because we restarted Briviact after 7 months now he is having high side effects ( he mentioned that he wants to kill himself ,he doesn't want to be around people, doesn't want to go to school, doesn't want to be around kids at school, he is angry, yelling at us like he is the adult in the house.) He is not the same child at all,and it wasn't like that before. So I call his neurologist and ask to stop medication or to switch it ,she told me that we can start lacosemaide but I'm to scared to start new medication....
Dose anyone had experience something like that? Should I start his new medication or should I keep him on Briviact at least Briviact kept him seizure free for 2 years 🤔