New to The Sub! Advice?
Hi everyone!
I'm a 33 year old f who was diagnosed recently with hemiplegic migraine with brain stem aura.
I have a neuro who is trying to figure this out with me but it's disrupted my life significantly due to the length of my attacks (5 - 8 days) and recently I have had four back to back attacks with only a couple of days between.
I am currently on:
Nurtec ODT for abortive though it's been very hit or miss. Sometimes it works, sometimes it only lessens severity a tiny bit, others it fails completely.
Lesser & greater occipital nerve block with trigger point injection.
Toradol which has been very, very mildly helpful.
Starting Topamax for preventative tonight.
I've had such severe attacks that I can't hold a job and have been given until December 31st to find somewhere else to live. My attacks last days upon days and are completely debilitating to the point I will go days without eating more than a few crackers if I happen to have them within reach. I have filed for disability but because my attacks are so long I dont have "enough" of them to qualify (they told me my 4 back to back attacks lasting 20 days wasn't enough and I would somehow need upwards of 10 a month? Which isn't possible for the duration mine last lol). I've been fired from multiple jobs since I started experiencing these.
I am at my ropes end with how much these attacks have just completely ruined my life. What are some suggestions for anything at all that I could do to improve this?