u/Illustrious-Use-9592

I might have heds

ok for back ground my Boyd is messed up and has been for years. overall I’m starting to think things are connected. this isn’t the oh I think because I can bend something.

to start as a kid I had nurse maids elbow a few times and back pain since I can remembe. my bladder gave out when I was about 15 and I struggled to not be in the bathroom once and hour or have accidents. I was diagnosed with ibs but like my bladder over the last few months have run into issues with things not adding up to ibs.

my Drs found a pars defect on L3 a stress fracture on L2 and degenerative discs from T5-T12 when I was 17 as well.

i was diagnosed with what they thought was a sleep disored called idiopathic hypersonia however as of this year turned out to be idiopathic inter-cranial hypertension. the biggest sign I had of these too was muscle fatigue not solved by sleep and migraines.

I score a 7 on the beighton scale when done by a doctor. my knees slip constantly and so do my discs my muscles feel like they slide over my bones when I lift or play self hockey as well.

I have an appointment with a rheumatologist because of in going back pain trigger when I shift weight onto my right leg. my grandma had lupus and RA as well. google says HEDS is probably is but I needed to check

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u/Illustrious-Use-9592 — 10 days ago