u/Illustrious_Yak6933

Hi. I know it’s different for everyone but looking for tips to help my dad (67 stage 3 post whipple). He had his first session of folfirinox Wednesday 6th may.
we were warned “ you will feel great for a few days, then rubbish, but should be back to baseline for a “week off”. His consultant said he should be good to go back work as taxi driver.
It’s day 8 today and he seems to be getting worse- nothing unusual eg. Fatigue, loss of taste, diarrhoea, hard to swallow.
Did anyone else experience this too?
He is absolutely terrible at taking fluids (cup of coffee x2 and sips of water)and I wonder could this be making things worse
Past two days he vomited trying to swallow his creon.
Refusing to drink the calorie supplements
I’m going to buy some electrolytes tomorrow?
Any tips for helping increase fluids or feel little better?
Thank you

hi,

re: my dad 67, diagnosed nov 25-stage 3, had a whipple march 10th 2026

if i could ask if experienced similar side effects - thank you

my dad had his first session of folfirinox on wednesday and seems to be ok so far ( we were told things get worse around day 5/6 so holding by breath)

my question is- twice today when i went into talk to him his face was quite red ( like sunburn). he denies any pain, his temp was normal. it was gone ten mins later.

happened again this evening- lasted maybe 30 mins in total. He's stubborn and thinks we are all fussing so he would let me see if it was localised to his face.

hes eating, pooping as normal. went for his usual walk etc

im thinking its related to the steroids- but just wonder did anyone experience similar.

i think im terrified its a reaction to the chemo and they could potentially stop it.

( I will contact the oncology ward tomorrow to let them know regardless)

thank you