u/Imaginary-Target4852

I just arrived to cardiologist who diagnosed me with POTS. He said he needed a follow up to discuss hEDS diagnosis process. I opted to do genetic test and it came back negative helping solidify my case.

I’m in the room waiting. I have no idea what to expect. Is he literally just going to tell me all the things I have to do and send me elsewhere? Can he diagnose? No clue and I have heard so many horror stories in this subreddit.

The medical anxiety is real. I have multiple pages of symptom tracking through my life, notes directly correlated to 2017 criteria, and list of questions.

HERE WE GO!

Also for those of you in the midst of your journey to diagnosis, you’re not alone.

UPDATE: he gave me a diagnosis of heds. Now what?!