hEDS and determining rest days?
Hi im new here!
I have hEDS and need advice on how you determine when to rest.
Today for example: I wake up and I have this feeling that somethings not right with my body but I dont actually know what it is. It isnt a bad pain or any of the obvious symptoms. Couldn't say what it is.
So I decide to stay home as an exercise in "trusting my body" (because im typically trying to push through it and mothers day weekend that resulted in actually barfing in public and then shitting my pants. It was cool.)
Not too long after that, I get the fire shits and my vision starts being wobbly like its trying to become a migraine. Now im laying in bed feeling like my skeleton snuck out to a kegger last night. The spiny-grindy is full force. Aaand i discover theres rain in today's forecast so that would explain it.
But that "something is wrong and I dont know what" feeling is so awful to understand. I figure its part of the reason grappling with "maybe I AM just bonkers" is common for us (besides doctors saying so when theyre stumped).
Advice? Experiences?
Thanks internet! :]
-G