u/ImportantStranger271

Hi! I am a 49 year old female being treated at Mayo Clinic in Jacksonville Florida. For context I had a clean mammogram just one year ago and then felt a lump right before my scheduled preventive mammogram in March and here we are! I have lymph node involvement (10) and I'm being treated with Keynote 522. So far I've had my first two treatments with limited side effects. I've had some nausea and definitely some exhaustion, some skin itching and redness but the steroids have helped tremendously in the first few days following treatment. I am also trying acupuncture today for the first time. My doctor is not recommending any medical marijuana which I have a prescription for here in Florida, which has been very disappointing. I understand there's just not enough research about the possible interactions with the Keytruda. My doctors have been amazing and have said they're treating this with curative intent and believe that I will have very very good results and become a survivor.

I'm looking to hear from others that have a similar diagnosis and your experiences. I'm very nervous for the red devil chemo which I will start after the first 12 weeks of the plan I'm on now. I have opted for a double mastectomy and I'm BRCA 1 positive. I don't know what that means yet other than I probably will do an elective hysterectomy. My doctors have said I will in all likelihood also have to do radiation.

I absolutely hate being in this club and I hate that you guys are in it too but I know it's been helpful for me to hear from others in a similar situation. I'm married and have a very supportive husband and I also have two boys that are 18 and 15. I can say with 100% certainty that the waiting to get the treatment plan and undergoing the Pet Scan which was terrifying was the worst part of this so far. I feel far better and more confident now that I have a plan in place and a great support team.

Love to all of you amazing ladies!

Good afternoon! I just started chemotherapy and I'm doing the Keynote 522. My doctor has stated he does not recommend any medical marijuana (I live in Florida and have a medical marijuana card). He said this is because there is not enough research as it relates to interactions with the Keytruda. I will follow doctor's orders but I have terrible anxiety and I know that gummies help me tremendously with that and also with an appetite, nausea etc. they have given me plenty of anti-nausea drugs so I am appreciative of that.

I'm curious if anyone else has experience with this and appreciate any insights.

One of the nurses said if she thinks it will help that I should use it sparingly but from time to time it should be fine. I just don't want to do anything that interferes with the effectiveness of this treatment!