Hi, I started yselty (linzagolix) 200mg with add back hormone therapy (kliovance) two weeks ago today. I was sick on the first night of taking it but then fine until the Monday, then I started what I can only describe as the worst period of my life, heavy bleeding, massive clots, numb legs, abdominal pain, sickness, nausea, pelvic pain, back pain, chest pain, can’t walk around without feeling like I’m wetting myself. I was admitted to hospital on the Wednesday for two nights and put on naproxen, tramadol and oramorph, 3 painkillers I’ve never had to take.
I haven’t been able to have an internal ultrasound due to the pain, but they’ve done two external and apparently my ovaries are fine and none of my cysts have ruptured. For more context, I was diagnosed with endometriosis in December via mri, with my bowel and bladder and uterus being stuck together.
Just looking for anyone else to share their experience on this medication or any recommendations of what to do. I’m only 19 and they’re reluctant to operate because of my age. This is the worst flare up I’ve had in my life and I’m not even sure what to ask for anymore or what to expect. I haven’t been able to do normal activities in over a week and I’ve never had to be hospitalised before, hopefully I’m discharged today but I’ve never had endometriosis affect my life like this and really need an idea of what to expect or do next.