u/InevitableLibrary632

Hello I’ve been battling DSRCT for some time now I have had more chemo then I can count have had 3 surgery’s was NED for about 6 months and recently reoccurred in a small area in my Lymp nodes. Emotionally I have been drained I don’t wanna go to work anymore I’m so tired from chemo. I don’t really wanna talk to people anymore. I have nightmares about being on the operating table and spending time in the hospital. I feel so depressed that I’ve done all of this and have to do it again I didn’t even get a year.

I am 30 years old with a rare cancer called DSRCT I’ve been trying to get a second option on my cancer but no institutions get back to you when you request an appointment I am in the north east I’ve been trying for over a week since I found out my cancer is back I’ve tried Cleveland clinic Dana farber mount sinai fox chase John Hopkins and not one of them actually return phone calls I just wanna be treated for this disease I have but nobody returns phone calls or emails I’m such a screw up for getting this cancer I don’t know why I bother trying anymore I’ve had more chemo then anyone could imagine multiple surgeries radiation and it still came back