u/Intrepid-Fee-2212

I’ve spent a lot of time reading PSSD forums, and everyone’s symptoms, triggers, and treatment responses seem different.

I’m thinking about building a tool that could:

* Find reports from people with similar symptoms.
* Show what treatments they tried and how they responded.
* Track symptoms and possible triggers.
* Organize test results and generate a report for doctors.

The goal isn’t to diagnose PSSD, just to help people find relevant cases and better organize their own data.

Would you use something like this? Or does something similar already exist?

I’ve noticed something really interesting after running lots of self-comparison tests and ruling out other factors. For me, the brain fog I get from POIS definitely ties in with playing video games.

To be more accurate, it’s all about intensely focusing while sitting in front of a computer. Thinking about it more broadly, gaming just demands your brain work at full capacity for a long stretch.

On days I skip video games entirely, my brain fog never gets any worse all day long. But if I game during the day, my brain fog always hits its worst point somewhere between 3–4 PM or 5–6 PM.

My guess is this flare-up happens because I’ve overworked my brain with that high-intensity mental effort.

On a side note, I’ve found regular incline walking on the treadmill works wonders for my symptoms. I walk slowly at a really low speed with the treadmill set to its maximum incline, and sticking with this uphill exercise long-term has helped me improve my POIS-related issues a great deal.

Hi guys,
I’m also a POIS sufferer, and like many people here, I’ve spent countless hours reading Reddit, POISCenter, papers, and trying to understand my own symptoms.
One thing I’ve realized is that POIS is extremely complex. Symptoms, triggers and possible interventions vary so much from person to person, and a lot of useful information is scattered across different forums and discussions.
I’ve been thinking about building a tool specifically for people like us, and I’d really appreciate your thoughts before I spend time on it.
The core features I have in mind would be free:
• Symptom tracking
• Recording environmental factors (sleep, stress, diet, exercise, etc.)
• Weekly automatic analysis and reports
• Tracking patterns over time
• Weekly summaries of new POIS discussions from Reddit, POISCenter and other forums
• Personal reports that can be shared with doctors
My hope is to help people organize information and better understand their own patterns, not to replace doctors.
I am also considering an optional AI chat feature, trained specifically on POIS-related information. Because POIS symptoms are so complicated, AI could help collect symptoms conversationally, organize information, and suggest possible directions or things to discuss with healthcare professionals.
This part would probably cost money simply because AI itself is expensive to run. I honestly don’t expect this project to be profitable (our community is tiny), and my goal would only be to cover operating costs. I was thinking maybe something like $4.99/month, while keeping most features free (including weekly analyses and reports).
That said, I’m not attached to this idea at all. If most people feel that the AI chat part isn’t necessary, I simply won’t build it. That would reduce operating costs significantly, and the whole project could remain completely free.
Honestly, I’m much more interested in creating something genuinely useful for our tiny community than trying to monetize it. The AI conversation part is only something I’m considering because POIS is so complicated and difficult to organize, not because I expect it to make money.
A few questions:
Do you think something like this should exist?
What features would be most valuable to you?
What would you absolutely NOT want this tool to do?
Would charging a small amount for optional AI conversations feel inappropriate or exploitative?
To be honest, I’m mainly trying to figure out whether something like this would actually be helpful. If people don’t think it’s useful, I’d rather know now than spend months building something nobody wants.
I’d really appreciate any thoughts or suggestions.
Thank you ❤️