u/Investlikethebest94

Baby & lack of sleep

Has anyone here got epilepsy and a baby or children? How was your experience with epilepsy and possible sleep deprivation?

First child due in July and 10 months seizure free currently, so hoping to have no more 🙏 No triggers for my seizures but sleep and stress I think are the main things.

Doing a keto diet and no alcohol since my last seizure 10 months ago, we are both worried the sleep might affect it so thinking I go to bed early and do the 5am shift onwards as I’m naturally up for work around 5.30-6am most days.

Any advice or tips would be appreciated!

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u/Investlikethebest94 — 5 days ago

So I have epilepsy, tonic clonics. Started around 5/6 years ago and I’ve had 6 seizures , I’m nearly 32 years old , last seizure was August last year.

I’ve found recently everyday I’m getting anxious about having a seizure when anything at all feels off with me, it’s getting harder and not sure why.

I stopped driving in 2024 and I’m hoping to drive again this August if I have no more seizures so I’m not sure if I’m stressing more because I really want to get back driving to give me independence again. I’ve had 3 seizures since that August 2024 so this is the longest I’ve gone in a while , almost 10 months now.

Thinking about getting therapy or similar but I don’t think someone will understand at all unless they have epilepsy, my partner, family, friends etc are all supportive but I feel like I can’t talk to them as it just doesn’t register the same way as someone who maybe has epilepsy or different experiences.

But anyway the anxiety recently is getting tough, getting it everyday when I feel wobbly, tired, anything off at all.

Anyone else get this? Did anything help you? Therapy seems like im just paying someone to listen to my rant but if it works it works!

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u/Investlikethebest94 — 23 days ago