u/Janllwithlla

Struggling With Spina Bifida and the Future

I was diagnosed at birth with Spina Bifida I had a noticeable lesion on my lower back and I had surgery at the age of 3 I consider myself lucky because I was still able to walk but I have never been able to fully empty my bladder so I have been using catheterization since then Today I am 19 years old and I still use a catheter Sometimes I wonder what will happen to me in the future Will I improve and be able to stop using it I struggle a lot with travel and going out and I often think about whether I will find a partner who can accept this situation
Internally I sometimes feel hopeful that I might recover There are moments when I feel happy and even manage to urinate without using a catheter but other times I experience random leakage which makes me feel embarrassed and overthink my situation in life

Thank you for reading I would really appreciate hearing your thoughts and experiences and whether anyone here has gone through something similar

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u/Janllwithlla — 7 days ago