u/JenP1966

M Protein pattern during treatment

Hello All! My brother has just completed cycle 3 of his induction phase. His M-protein count dropped tremendously from no treatment to cycle 1, but has leveled off since then. Question, has anyone seem their M-protein count plateau on a cycle and then decrease on subsequent cycles? Or once it plateaus has it stayed that way absent changes in the regimen? Thank you for any info or insight!

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u/JenP1966 — 5 days ago

Cold Cap during Malphalan?

Hi again all! What a wonderful forum this is. I really appreciate the care and kindness everyone here shows to one another.

Question - has anyone here worn a cold cap during your Malphalin? If so, did you use the cold caps that you change out regularly or one with a continuous flow that keeps the cap cold? And did it help?

With gratitude. :)

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u/JenP1966 — 11 days ago

SCT protocol choices - in hospital, hybrid, home. Thoughts?

Hi All,

My brother will be having a stem cell transplant at UCSF in the fall. His transplant team has offered him three options:

The first involves being in the hospital the entire time (which is what most people do, I believe).

The second option is a hybrid protocol that involves getting malphalan, then going home for a few days and when the discomfort from the malphalan kicks in, being admitted to the hospital.

The third is to do most of the process as outpatient, going to the hospital daily for blood draws, etc, and only being admitted if necessary.

I will be living with him during his process and am able to drive him to the hospital as needed. He's about 7 miles away. He is considering hybrid or outpatient because he knows he will sleep better at home and the food will be healthier at home.

Has anyone on here done hybrid or outpatient SCT? If so, how did it work out for you?

Thank you for sharing!

Jen

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u/JenP1966 — 14 days ago