u/JerdieBird

Enjoy! 🍁

36f diagnosed in 2011, on Plaquenil

Do y'all get puffy in the face during flares even without steroids? My I've had bloodwork done, kidneys and other organs are fine. My inflammatory markers in general are actually all fine as well, but I'm definitely flaring, and my rheumatologist agrees. I'll be starting Saphnelo soon. Just tired of looking swollen in my face.

Hey lupus family,

36F diagnosed in 2011 with some disabling comorbidities...receiving SSI and IHSS

I recently discovered the Department of Rehabilitation can help pay, and sometimes pay tuition in full, plus cost of supplies needed, for degree programs for disabled folks.

Does anyone have any experience/stories they would be willing to share with me? I am very interested, but cautiously optimistic because I don't want to get my hopes up. I would love to pursue the art degree I was unable to when my health came crashing down, and I see the DOR works well with online programs. I'm in SoCal if that's of any relevance.

Thank you 💜

After a lot of failed biologics, (dx'd 2012) my rheumatologist wants me to try saphnelo. I'm totally on board, but I just found out today from an article in my local newspaper that saphnelo is now available as a once-weekly at-home injection?

Is anyone here doing it this way instead of the monthly infusion?

I'd love to hear any and all experiences, whether it be infusion or injection.

❤️