u/Jinxie1206

Hello! I was diagnosed with lupus last June and for the most part I have been ok. Today I woke up and every single inch of my body is in pain. My joints feel like they’re made of glass and I have NEVER been in this much pain. My doctor gave me a pack of prednisone which is only 4mg’s to take if I ever feel really bad. I have NEVER taken a steroid in my life. I’m scared and have no idea how to actually take them. Do I take them with food? At night? Any advice will help and I will only be taking them for a few days.

Hello! My favorite genre of music is symphonic metal although I love other genres. It’s my goal to one day be in my own symphonic metal band. I have always loved to write and I would get high marks in English and would get A+ and even got certificates for my writing. Including poetry. I want to write a lot of the lyrics myself but I feel like they are boring and generic. I have a bunch of topics that I would love to write about but I need advice. Any help would be greatly appreciated!

I’m sure that many of you are aware that a new game is coming in the spring of 2027! The company says that they hope that this will be the first of many more games to come. Spyro has been my favorite game since childhood. Yes I played the original 90’s one, yes I’m a millennial. Fight me. What are your thoughts or feelings? Have you played the originals?

Hello my beautiful cornea challenged people! I was just prescribed scleral lenses and I am at a loss. For the record I have NEVER worn ANY kind of contact lenses. Not even costume lenses. I’ve been wearing glasses for the past 30 years of my life. I have lupus and unfortunately the lupus damaged my cornea and I now must wear scleral lenses. What is the best case for both home and travel? My doctor said that he will go over solutions and all that when I go to pick them up. I’ve already had my fitting I’m just waiting for the call to go pick them up. I however want to get advice from wearers of these lenses. Any recommendations or advice is highly appreciated!

Ok so I’m curious as to how many men are turned off my having sex while their partner is on their period. I’m a lady and I honestly like it. My ex was trash but one thing that I can say about him was that he wasn’t grossed or freaked out about it. He enjoyed it as much as I did. I’m just curious as to see how other men think/feel. As yes there are many women like myself who enjoy it. And yes there is a mess but I personally like it. Please be honest.

Hello, I’m a 34 year old female who was diagnosed when I was 15. I really want to tell my story in case anyone cares.

I have always struggled with math all throughout my school years it was my worst subject. I absolutely hated math, I was just so bad at it. As I got older and I had to learn more complex math my hatred and struggles only got worse. No matter how many times the teacher explained it to me I just simply couldn’t understand it. Not only that but I misread numbers and read them out of order which made the math even more frustrating. Homework was a big struggle and I would cry and fight with my parents. It got really bad when I started to fail because I lied to my parents about doing math homework when I wasn’t. My mom decided to get me reevaluated and I was once again diagnosed with ADHD. I’ve had ADHD my entire life so it wasn’t a big surprise. The doctor who evaluated me told me that I have a learning disability. I told her that I knew about my ADHD but she explained to me that ADHD isn’t a learning disability. She then told me that I have dyscalculia. She went on and explained to me what it was and how it affects people. She told me that I have always had it but that at least at the time it wasn’t very well known so getting a diagnosis was a bit difficult. Everything that she explained to me made sense. The misreading numbers, the not grasping math. I asked her if I was study and she said that I’m actually really smart but I just have a hard time with math.

When she told me that I cried, and it wasn’t because I was sad. It was because I finally had an explanation for my crappy math skills. For so long I thought that my brain was broken and that I’m just stupid.

I still struggle with math but I have gotten better. I’ll never be a scientist or physicist or anything like that but I can somewhat function. Reading numbers is still a huge struggle for me. I have always been gifted with trades and writing. I focus on what I’m good at.

Anyway that’s my story. I hope that I didn’t bore you. I would love to hear about other people’s journey with this learning disability.

Ok so I’m a millennial and I have been well aware of MCR for a very long time. I however just started to really listen to them for the first time. I have no idea why I dismissed them so much in the past. They are GREAT and I love Gerard’s voice. Over the years people told me how they hated the band because of how whiney and annoying his voice is. Someone once told me that he sounds like “a little bitch boy.”

In my opinion I have no idea what they were complaining about. He has a great voice and while I can kind of hear the “whiney” quality of it that’s one of my favorite parts about his voice. I can’t understand why it took me this long to become obsessed with MCR. Anyway I love his beautiful smooth tenor voice and I just wanted to share that I’m a new listener and how much I love his vocals.
Thank you!

Ok so this might be a bit of a maybe icky subject? I’m not sure but I wanted to know how many of you have sex while you’re on your period and if you enjoy it. My ex was an asshole and was horrible in a lot of ways however he didn’t mind getting messy and loved it when we would have sex on my period. One of his best qualities honestly. Personally I like period sex and I’m not ashamed or put off by it. There’s no need to in my opinion however I know that some people avoid sex which is fine, to each their own. I’m just curious to see if I’m the only one who enjoys having sex while I’m on my period? How do your partners feel? What’s your experience? How do you avoid the mess? Personally I lie on my back and put a dark towel underneath me. I’m just tired of periods being considered nasty when they aren’t

I’m not sure but I wanted to know how many of you have sex while you’re on your period and if you enjoy it?

I discovered Six about three years ago and I have been obsessed with the musical since then. I got to see it on broadway last year and I plan on seeing it again. I love it so much! It’s my favorite musical and I can’t stop listening to the music or watching bootlegs on YouTube.

I just wanted to share my love of six. It’s amazing and I can’t get over it! I even love it more than Wicked and I never thought that I would find a musical that I love more than Wicked!

Hello, so I was diagnosed lupus a little over a year ago and I’m still getting used to this lifestyle. This might be a really stupid question but is it ok to get gel manicures or nails? I know that UV lights are used for gel but I’m wondering if I should avoid them? Sorry if this is stupid I’m still getting used to living with this disease.

Hello! I have decided to get an associate degree in history and I’ve read that a lot of people who have this degree go to law school. Is this true? How many of you with an associates degree in history went to law school?

Ok so I was prescribed this medication to help with my depression. I know duh but I just wanted to state that. I took it with food like my doctor suggested and within 2 hours I violently threw up everything that I had eaten. I threw up so hard that I pissed all over myself. I know ew I just wanted to describe how violent the vomiting was. This was my very first dose and it was only 10mg. Has anyone had this kind of reaction? Should I try it again? I want to give it another shot but I don’t really want to vomit and pee on myself again.

Ok so here’s the thing, I have always been into the alternative stuff. Music, clothes, etc. I however do not have any tattoos and do not plan on getting any. I have nothing against them, I love them on other people but I don’t want any. I do have weird colored hair and piercings but I still do not outwardly label myself as alternative because I am not inked like so many other alternative people. I’m afraid of being made fun of or being called a “poser” and wanted to know if I can still use the label “alternative” sorry if this is a silly question I was just curious.

As we all know it’s never lupus but I actually have lupus and when I told my brother he sent me a meme of House saying it’s never lupus. My rheumatologist also has a poster of House in her office. I want to know if there are any people here who have the disease. Were you diagnosed before you started watching the show? Did the show help you to get diagnosed?

Personally I have a family history of lupus so I was very aware and familiar with the disease. I wasn’t diagnosed until I finished watching the serious.

Hello! I adopted a little 5 month old puppy and I am looking for good insurance. I lost my dog a year ago and I had Odi/ManyPets and I was wondering if anyone here has any recommendations? Odi kind of sucks and I’m overwhelmed with all the companies out there.

Any advice or recommendations would be very appreciated!

So, let’s talk about the show House. How do you people feel about it? I have mixed feelings since yes it has brought attention to the disease but not exactly the attention that lupus should get. Sometimes when I mention I have it people will ask me if it’s really lupus. Sometimes I laugh but other times it gets annoying. Someone one time asked me if it was a real disease or if it was made up by the show creators. I didn’t get mad because the person seemed to be genuinely confused so I explained to them that yeah, it does actually exist.when I told my brother that I was diagnosed with lupus he sent me a meme of House. Since it’s my brother I laughed and thought that it was funny. What do you guys think?

Ok so I’ve been part of this forum since I was diagnosed about a year ago. I really like this community. I have been given good advice and encouragement. There have been various discussions but I have yet to see one about intimacy and sex.

I am not asking for specific information or details. I was just wondering how this disease has affected you and your partners. Do the symptoms make it hard for you to be physically intimate with your partner? If you have faced challenges how did you deal with them?

I currently do not have a partner but I would like to be with someone in the future. I am afraid that the symptoms that I experience will make that difficult. The joint pain alone makes it hard to move so I can only imagine what it will be like to position myself for the activities. I do enjoy being intimate but I’m afraid of how my lupus will affect it as well as my partner. How did you tell your partner about your lupus? How did you explain that you might not be able to do certain things? How did you deal with the physical challenges?

Again I’m not asking anyone to go into detail about their sex life. I’m just curious because I have yet to read a post about this topic.