u/Key-Estate-2208

Hi everyone,

I wanted to get anyone’s thoughts on this, because I have been questioning my CT scan and my oncologist’s immediate next steps.

To give you some background, I was originally diagnosed with EC 99% with LVI, my oncologist recommended active surveillance since that is recommended in Canada when there is no spread.

I have been under surveillance for 1 and a half years. Around the year and a half mark I developed dermatomyositis with the tiff 1 gamma gene, which is an auto immune disease that happens in people who have had or have cancer, basically your immune system over reacts warning your body that there is something off.

This prompted my oncologist and rheumatologist to re-do my CT scan where this enlarged paratracheal lymph node popped up.

My Oncologist was quick with it, and already started scheduling me in for BEPx3, she also is brining my case to a tumor board to get more opinions.

I also emailed Dr.Einhorn and this was his response

“If your serum hCG and AFP are normal, you definitely need a biopsy which should be very easy to perform. From your description doubt this is testis cancer and more likely to be some sort of granulomatous disease such as sarcoidosis or histoplasmosis.”

My case is super specific but hoping anyone can provide any perspective from experience to my questions.

Has anyone had a paratracheal lymph node enlarged and it was something else?
I should push for a biopsy before agreeing to BEPx3, if it ends up being a fungal infection BEP would wipe me
Biopsies in Canada take 2 weeks am I losing a lot of time delaying BEP for a biopsy?

Please let me know your thoughts any inputs would be amazing!!!!

Hey guys,

I recently had a re-occurrence. I was in active surveillance for my EC with LVI. I was sooooo close to the two year mark and literally had my re-occurrence 5 months before the mark.

They found a single enlarged lymph node by my chest.

My doctor said I’ll need to go through BEPx3, starting July 13th.

I just need some advice how is BEP treatment, how rough will it get? And please is there light at the other end?

Will my life go back to normal, I’m a super active guy, will I able to go back to working out, running, playing sports.

Let me know, I kinda had a mental breakdown when I got the news everything’s been moving so fast.

All I wanted to do this summer was be cancer free and watch the World Cup.

New Enlarged Paratracheal Lymph node advice needed

Need 3xBEP. Had a re-occurrence. Need some advice and reassurance.