Theme Parks with SLS
Hi everyone,
I was diagnosed with Stiff Person Syndrome in March and I'm now on month 4 of IVIG. Since my diagnosis, I haven't traveled or really been out in crowded public places.
My family wants to go to Disney, and I really want to be there with my daughter and make those memories with her. At the same time, Disney feels like one of the worst possible places for someone with SPS.
I'll be using a wheelchair, so walking isn't my main concern. I'm more worried about muscle spasms, sensory overload, fatigue, crowds, and whether I'll end up spending the whole day trying to manage my symptoms instead of enjoying the trip.
Has anyone with SPS been to Disney or another theme park? Was it manageable? Any tips or things you wish you'd known before going?
I'd really appreciate hearing about your experiences. Thank you.
TLDR: yes or no to a Disneyland trip with SPS