Any other Female ultra runners with AS and EDS?
Has anyone here completed ultras while living with both EDS/hEDS and Ankylosing Spondylitis?
I’ve been trying to figure out how many of us are actually out there because sometimes it feels like I exist in a very weird venn diagram of:
ultrarunner
female athlete
connective tissue disorder
inflammatory autoimmune disease
Most of the advice I see for either condition alone is basically “maybe don’t run ultras,” yet here I am still showing up at start lines.
I’d genuinely love to connect with anyone navigating:
training through flare cycles
differentiating injury pain vs inflammatory pain
hypermobility + endurance sports
recovery challenges
strength training for joint stability
the mental side of balancing chronic illness with endurance goals
Not looking for medical advice — mostly just wondering if there are others out there doing this too because I have a feeling we’re a very small group.
Would love to hear your experience if this sounds like you.