anyone has these symptoms? Cold nose?
Hello,
I have some sort of trigeminal neuralgia+ sphenopalatine neuralgia everything atypical since my pain is constant but the pain can increase during the day to the point i cry.
Ive been reading a lot of the symptoms here and my symptoms are a bit different.
My pain is triggered by breathing, when i breathe i feel a cold pain through my left nostril and my nostril gets physically cold if i touch it. If the air is cold then im dead, i can not tolerate cold air, cause my normal pain which is a 7/8 goes straight to 10. Anyway this cold pain feeling goes through my left side of the throat and ends in my left ear. Since my pain is constant and triggered by breathing i wear a patch on my nose and depending on how i feel during the day i migh add a mask (like covid times) or even a electrical mask that provides heat and then my peaks of pain lower a little. This has not only affected the left side of my face but also my throat, since i have redness and my voice is affected as well. (They have ruled out everything else that migh affect my throat)
Im on oxcabazerpine 600mg a day for 6 weeks and then they increased it to 1200mg a day and amytriptiline 25mg each night. Ive been taking this high dose for almost 6 weeks, i can tell the peaks of my pain are a bit more controlled, since before i used to have maybe 6 peaks of high pain that would made me cry, and now i migh have 1. But im still not able to remove the patch on my nose cause the direct contact with normal air triggers my pain.
Anyway just wanted to know if anyone has this type of neuralgia? And what are you taking?