u/KurtisC8907

▲ 18 r/sarcoma

Are sarcomas ever cured or will we always have to worry about recurrence?

i’ve heard of a lot of people reporting recurrence after 15-18 years. in most other cancers i think that’s considered a new cancer because after 5 years the original cancer is “cured” right? is late recurrence just a problem that sarcomas have? at what point is it considered a new cancer rather than a recurrence for us? do we ever get to stop scanning or do we just have to be on our toes forever?

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u/KurtisC8907 — 9 days ago

Can anyone else "feel" their sarcoma?

Not sure if this makes sense or is unique to me. My sarcoma is in my right forearm so even though it is fairly deep between the bones of my forearm I can still kinda press down on the muscles around it. Before chemo it was causing hand pain / numbness and carpel tunnel like symptoms which is what made me get it checked out in the first place. Since starting chemo a few weeks ago those symptoms have gone away but when I press on the tumor itself it feels tender. I was just curious if this was common for tumors or if anyone else has experienced this

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u/KurtisC8907 — 17 days ago
▲ 12 r/sarcoma

How do you celebrate wins? do you?

This might be a strange question to ask. I'm still very early into this cancer journey and the first bit of it is so many scans and tests and so much new information that it feels like emotional and mental whiplash. Now that I'm in treatment things have "slowed down" i guess but now when we have good news or I feel good a certain day or something good happens I sometimes feel like I hesitate to be too optimistic or positive about it because I'm worried that there is bad news around the corner and getting too excited about good news might make the bad news even more crushing. Does anyone else feel like this? How do you manage this, do you still celebrate the wins or do you kind of try to keep your mental state more stable through ups and downs?

Also if anyone has any tips on how to stay occupied or try to enjoy life during the immunocompromised part of chemo that would be helpful. Does all chemo leave the patient immunocompromised or is it only the really intense ones?

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u/KurtisC8907 — 24 days ago