u/L-ap-_-

MPNST Scares

As my previous posting history, I have new lumps arise all the time. Sometimes areas will be like a burning pain other times not so much. I have had a new one grow on the back part of my right rib but more to the side of my body. Recently it’s caused terrible shitty pains but I’m unsure if that’s from activity or not as well as general stretching.
In Jan of last year I got one in my abdomen and the same type of pain occurs. I get that this could just be that they are subcutaneous and are most likely benign as I’ve had these for ages and nothing has seemed to worsen. I have an NF appt in OCT but I’m just worried that what if these have been malignant for so long and the continuous waiting has made this turn into something from a quick surgery into basically life or death

I apologise for being so grim

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u/L-ap-_- — 7 days ago

In my own head

After reading back my own posts and seeing posts from others I realise I’m just going crazy.

I do in fact have lumps and what I said is true however some of these lumps are on my ribs and areas where I contort my body and need to move it which gets me stressed that it’s something awful. Maybe I need to stay off reddit

That will be all

We got this

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u/L-ap-_- — 10 days ago

Pulses

For those who have NF. Do you feel random ‘pulses’ in your body? Like when you can feel a certain area like it’s pulsing or has liquids moving around? Is this NF related or is this just something normal

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u/L-ap-_- — 11 days ago

Bones

Hey all. I got NF1 and finally got an appt to see a specialist in October. However, some of these lumps have been scaring me. Under my neck (that flat part under your face before your neck) I have one little lump that moves around easily but then I also have about 3 solid ones that don’t move at all. I also have a crazy pain in my back right where my ribs are and have a small lump causing pain. Also. Where my knee bone is but on the right side of my right knee there is a mass of sorts which if I put pressure on it I feel a pain radiate down to my ankle. I got that scanned ages ago and they were just like ‘oh? What’s that? Anyway’ and nothing else. I have some digestive issues too (floating stools) however only another ‘concerning’ symptom or two that could be cancerous. I’m 21M and I’m just so concerned I have cancer especially because of my terrible terrible diet these last 18 months and I fear that also having NF has essentially caused me to have cancer

Sorry for the rant

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u/L-ap-_- — 11 days ago