u/LeeBeeD33

This started for me in September of last year as a tolerable jolt in my jaw. By November I was a trembling whimpering mess for up to a minute at least once daily. I was started on Carbamazipine which has worked like a miracle, however I have required dose increases every 3 or 4 weeks because it seems to be less effective by then. Every time the pain comes back first as just a small flash, then over the next week rapidly worsens until the Carbamazipine is increased. My fear is that I've now hit 1200mg and am at the top of the dosing range for this med. I am scheduled with Mayo in a few months, however if I follow the same pattern I have, I'm in for a lot of pain before I can even get there. Anyone else out there have a rapidly worsening disease? How have you dealt with it?