u/Level-Journalist63

▲ 18 r/CJD

5 weeks

My mom died tonight from CJD- almost 5 weeks after her diagnosis- which we got the same day she went into full time care. She had steadily declined for 6 months until her diagnosis, but she had fallen & gotten a concussion and for many months that was the focus.

She was 81. It is not lost on me that we were lucky to have so many years with her.

I’m still dumbfounded by the speed of this disease. She was still walking on Easter, stopped eating and responding 5 days ago, and today it’s over.

I’ll tell people it’s in the same family as Alzheimer’s & they think they know. I could never have understood the speed of this disease until I witnessed it.

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u/Level-Journalist63 — 5 days ago