u/Levi_called_Biff

I’ve had four Shock Clock Max devices fail on me, three via the shock feature completely stopping working, one via water ingression. First three were within a year of when I bought the device and were warrantied, the fourth device lasted longer but failed after another year.

I really miss having one though, I used it almost every night. I know the SCM is a newer and more complicated device for many reasons, so I was wondering if any of the other simpler Pavlok devices might be more reliable?

FWIW, having the strongest possible shock is also of value to me, as I have a sleep disorder and need a lot of stimulus to wake up.

Anyone have any thoughts? Thanks

All the sleep specialists seem to be MDs, who have super limited time, availability, and creativity. The providers who often have more of those things (esp. Psych RNs, NDs) never seem to have much experience managing sleep disorders, and thus are reluctant to do so.

I’m at a stage in my IH treatment journey where I would REALLY like a provider I can see monthly, for at least 30 if not 60min, for complex medication management. They don’t even need to actually prescribe me anything, as I can request meds from my main sleep doc.

Is this even possible? For those of you who have someone like this, what kind of provider do you see and how did you find them?

edit: Located in Seattle, WA. IH for 4yr, diagnosis 18mo ago.

—

A little more background: I’ve tried almost all the meds individually (including oxybates), and most didn’t work at all or gave awful side effects. I currently rely on adderall IR to wake up plus max dose vyvanse, but it’s not sustainable and I still struggle a lot.

I know some of you have found relief in different combinations of meds, so it seems that my next step is to slowly try different combos to try to balance efficacy, tolerance, and side effects. But my board certified sleep doc says he is basically out of ideas, and also scheduled our next follow up appt for a year out 🙄. He’s open to my suggestions though and is responsive via secure messaging, but I’m sooo tired of basically being my own doctor and doing all communication through text.