Much better, but still with these symptoms that never went away
My worst period was from November 2023 to July 2025. Up until then, it was disastrous. My main symptoms were:
- Joint pain: (neck, shoulder blades, shoulders, legs)
- Pain or burning in the nerves
- Sensation of having bugs crawling all over my body.
- Weakness in those areas where I felt movement or bugs inside me! (perceived weakness because I went to the neurologist and there was no real lack of strength)
- Vertigo.
- Dry eyes
- Very intense fatigue
- Unlike many, I could sleep all day!
- Numbness and tingling throughout my body
- Very heavy limbs.
These are the ones I remember, although I ended up writing down 35 different symptoms!
Many have gone away. I've gone back to doing light exercise, walking, working, almost a normal life! Almost! But I still have weakness in some parts of my body, not all over! One day it's in my calves and arms, another day it's my shoulder blades and buttocks! And I also have something strange: when I touch certain parts of my body, I feel a kind of nervous reaction that causes a burning sensation and makes me feel weak! I have a trigger point in my right buttock, and if I press on it, it causes strange reactions in my foot. The weird thing is that if I press on my left buttock, my right foot reacts too! The same thing happens in my neck; if I massage my trapezius muscle, it contracts in my leg! It's crazy!
I know! Every doctor I've seen tells me there's no nerve pathway causing this! But it happens! It's like everything on my right side—from my neck, cervical spine, lumbar region, iliac crest, buttocks, thigh, knee, and foot—is irritated!
This bothers me constantly! There's no rest, and the weakness terrifies me because when this started, it was overwhelming! Has anyone else experienced this or recovered from something like this?