I am thinking of what should I expect now
Hello everyone !
English is not my main language so please excuse my bad wording sometimes.
I (F24) am currently suspected to have AIH (and only that) and waiting for my liver biopsy (expected on July 9), and I never drink, smoke or take drugs (but I've been 4 years total on different birth control pills for PCOS but don’t take any since 1y or so), no diabetes nor pre-diabetes and I am currently overweight but tried my best to eat healthy (less sugar/greasy food and no soda anymore) since January and was advised to follow a cirrhosis patient diet around May (and lost about 5kg since)
My liver enzymes are between for AST 130-170, ALT 260-320 and GGT 60-90 but no sign of hepatic insufficiency yet, peak during June
I am positive to anti-smooth muscle antibody at 1/160 but they are not anti-actine specific, have a little deficit in alpha 1 antitrypsin, am positive for ANA (AC-4/5/31) at 1/80 and suspected to have some Anti-M2-3E
My liver as NASH for sure and is starting to turn fibrotic (currently 12kPa on the fibroscan) and seems to be worsening even after the big change in my diet and loosing weight
All this was discovered in April after a blood test and a visit to the emergency after severe abdominal pain, but I started feeling sick since February but kind of brush it off on other causes like PCOS, Stress and stuff. I am always exhausted to the point of needing to sleep 17 hours or so, feeling weak and always feel low in battery even after sleeping. I feel severe pain on my liver side after almost every meal, kind of the same I was experiencing before they removed my gallbladder due to gallstones (at 12yo) and needle like pain around the spleen (both are a little too big on the scanner too)
I know it is kind of childish to ask strangers on the internet and I know you don’t have the answers either but I'm feeling completely lost, and asking some of you that had experienced this or something similar may ease me a little. I've always been easily ill since childhood but this is so much more...
So what should I expect from the biopsy ? Should I prepare myself mentally now to everything that comes after if the diagnosis is confirmed ? Or try not to think so much ? What did you do/would do if you were in my shoes ?
Thank you for taking the time to read this