u/Low_Hair8976 — reddlx

Wedding Venues on a budget

Hello Everyone!!

Needing alot of help here.. My beautiful stepdaughter decided to inform us that she would like to get married before her brother leaves for his mission...Yall thats in NOVEMBER 😭 So as the "stepmother" here I am going to keep my lips sealed and just try to help in the areas I can.. Im determined to try and find something beautiful that wont cost us a million dollars. We just dont have it. Im chronically ill and we cant even afford my own stuff let alone some of the places I have seen. So with that being said is there anybody out there that can give any pointers or ideas of places I could possibly look into? We do need to be able to have tables and chairs and we also have to think about weather in the month of October as well... I would honestly appreciate just any kind of positive feedback because this has honestly just stressed us out so much 😔

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u/Low_Hair8976 — 6 days ago

▲ 2 r/ankylosingspondylitis

Salonpa's

Hey Guys!!! So I included a photo that shows were most of what debilitates me now is. So far NONE of my specialists can help me on this one so here I am searching to see if anyone else goes through anything similar.

Ive been on biologics for over a year now. We've struggled to find one that "works" however I had an epitome moment and brought up the fact that possibly my issues are not related to something that these biologics will even touch. I think what has happened is with all of these changes that came on with AS has completely misaligned me absolutely everywhere. Maybe just maybe the biologics are working but this stupid crap is taking over because it hasn't been addressed properly. I believe its the QL muscle getting inflamed and when it does all hell breaks lose with my nervous system. I also have Periformis Syndrome along with Greater Trochanteric Pain Syndrome so who knows where its coming from...

The pain never goes away, its a continuous state of burning, knawing, deep pain that only gets worse if I try to sit or lay down. Standing is not too bad, but how are any of us to stand very long? Im just at my breaking point 90% of everyday 🥺 Its not fair to anyone around me or even myself.

The only thing that seems to give any relief at all is Salonpas 🤷‍♀️ but I usually end up with 15-20 of those little things all over me and financially we are just done for.. 😭 Its literally always something 💔

If anyone has any "pointers" or advice Id sure appreciate any feedback.

Thank you all for being apart of this sub, its literally my ONLY place I have to turn too...

u/Low_Hair8976 — 2 months ago

▲ 9 r/ankylosingspondylitis

Guys, Ill keep this short and simple. Idk about yall, but for me I literally cannot sit still. Idk if my brain has me trained that if I sit too long Ill hurt or what but its becoming kind of obvious now to everyone around me 🥺 and its not always just a normal kind of restless. Sometimes I feel shaky or nervous as hell and when the grandkids get crazy it makes it worse 😭 This isnt fair anymore... All ive ever wanted was to be a Grammy and let the kids be wild and free. Now I cant even hardly take when the little one cries 😭 WTH 😭😭 I despise this disease and can only hope to God that one day my miracle medication will find me because I honest to god cant imagine another 10 years like this, I just cant 💔

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u/Low_Hair8976 — 4 months ago