Hi..I have been diagnosed with uctd an year ago..If there is anyone around who has been dealing with this for 5 or more years without progressing to a definite ctd,can you please share your experience,symptoms etc?Just anxious about how this disease is gonna progress😅😅
Hi..Is it normal to experience lupus related hairfall when Im not flaring and all other symptoms are in remission?My esr has dropped down to 27 from 40 and joint pain(which was my major symptom) reduced as well..Still I have bad non scarring alopecia which responds only to topical steroids..On topical steroids hairfall stops within days..Idk whats going on anymore..Do anyone has similar experiences?I have no hormonal issues or nutritional issues either
Hi..I have been diagnosed with uctd approximately an year ago..Have been on hcqs 200mg for last 10 months..My joint pain improved,esr came down from 40 to 27..Still no change in hairfall..Im losing clumps and clumps..There are no bald spots,just diffuse shedding.I have heard that hcqs must help if hairfall is uctd related.I have no hormonal issues or nutritional deficiencies and hairfall reduces on application of topical steroids.So its confirmed that hairfall is inflammatory. But even when all other symptoms improved hairfall persisted.idk why..Any similar experiences or any hope?🥲🥲Im devasted at this point
Are there any Indians in this sub?If you don't mind can you please share your symptoms and medicines that helped you?