u/Mental_Education404

In May, I had my usual follow up scan and unfortunately it was back, but it was back faster than usual, and without surgery they can't confirm that it's moved up but it's more than likely (previously AA3).

Fast forward, I've been doing 3 weekly Avastin infusions and 6 weekly chemo tablets (Lomustine) and continue to do this (at least chemo) until the end of the year.

FINALLY had my follow up scan to see if the treatment was working and IT IS!!! My husband and I are so relieved, we know it is far from over, but oh my gosh the relief knowing it is working.

So yes, it's not ideal but if it keeps me alive I will take that 3 hour, maybe longer some days round trip (thats just the drive) so basically a whole day but if it keeps me around for my 2 and 5 year olds with my hubby, I don't mind.

I thought I'd spread the joy ❤️

Hi,

Just wanting to see if any one has experience with these two drugs? I know that the Lomustine is the chemo drug, but what we're your side effects, what do you wish you knew before you started?

I've got AA3, however, since finishing treatment August last year (2025) of temezolomide, it has returned. It's returned sometime between 18/01/2026 and 03/05/2026.

I don't know what to think I'm fairly confused but we are hoping for the best and preparing for the worst, has anyone else experienced it returning so fast? I'm just lost and confused and have two young children, but it's not my time.

Thanks for reading if you read this confusing post!

I want her to understand the severity of it but not use the word cancer....any help would be appreciated. Ty