u/Mental_Education404

Experience with Avastin and Lomustine

Hi,

Just wanting to see if any one has experience with these two drugs? I know that the Lomustine is the chemo drug, but what we're your side effects, what do you wish you knew before you started?

I've got AA3, however, since finishing treatment August last year (2025) of temezolomide, it has returned. It's returned sometime between 18/01/2026 and 03/05/2026.

I don't know what to think I'm fairly confused but we are hoping for the best and preparing for the worst, has anyone else experienced it returning so fast? I'm just lost and confused and have two young children, but it's not my time.

Thanks for reading if you read this confusing post!

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u/Mental_Education404 — 6 days ago

Can anyone help me break the news of recurrence to a 5 nearly 6 year old? I'm at a loss.

I want her to understand the severity of it but not use the word cancer....any help would be appreciated. Ty

reddit.com
u/Mental_Education404 — 11 days ago