Diagnosed with stage 3 TC Pure Embryonal Carcinoma
Late to the posting club, Im aged 28 diagnosed in April 2026, currently started 4x BEP cycle 4 (was lurking here the first 3 and gto the courage to post cycle 4). What a journey it has been, started out as abdominal and back pain only and noticed nothing in my testicles. After an ER visit that got the ball rolling with all the needed referrals and scans, ended up with Stage 3B/C Pure Embryonal Carcinoma, with only metastasis to lymph nodes in abdomen area, chest cavity and neck, none to lungs, brain and other vitals. 2 Largest tumors are in abdomen area (retroperitoneal) which measured 4.5cmx9cm, other neck and chest lymph nodes measured around 2cm each. Ultrasound yielded burned out tumor in the left testes with each testes being roughly the same normal size (the report was vague in that regard). But the timing between referrals, scans and diagnosis happened so quickly, which i was fortunate for, we went straight to chemo and the orchiectomy is potentially later and probably an inevitable RPLND (?). Just wondering, anyone experienced something similar? Pure EC seems rare and would like to see how many in our community has gone through it.
To close off this post, I stand in solidarity with all that are affected by TC, whether survivor, caregiver or current fighter. My thoughts are with those that have passed on. I couldn't have made it here without reading all the inspiring stories in this community.