My mom is at the hospital
Hello. I have sometimes answered your posts here, but this is the first time, when i post.
My mom 62F had confusion in sept 25. We took her to ER,they saw something in her right occipital (or temporal) lobe. It looked like low grade glioma and the confusion was an epileptic disorder. They started keppra and my mom went back to the normal. 1 month follow-up scan that something was still there and they desided to operate. Craniotomy was in november and initial pathology was glioma gr 2-3. Final results came in dec 25, glioblastoma.
Soc was in jan-feb this year and after that she has been on tmz. Follow-up scan in begining of 6/26 was clear.
After that she got confused and very tired again. She fell couple times. When i visited her last weekend, she was not herself. She just sat and did nothing. After that my stepfather noticed that she cant use fork and "eats " from empty plate with empty fork. We also noticed that she doesnt react anything that happens on her left side.
She is denial and didnt feel anything strange, as always. She said that she feels well and mocked us that we all the time look after her despite "she is healthy".
So we took her to er last tuesday. She got to the hospital and mri is showing"something new" near te operation area. Spots, that werent there 4 weeks ago. They say thar it Coud be radiation necrosis or that the tumor kicks in again. They started steroids and there is massive improvent in her health. She talks like before this disease, she walks better. But the left side neglect is real and raw.
Im worried about new lesions now. They didnt glow while contrast mri, but the original tumor didnt do that as well. And they are NOT in the original tumor cavity, they are ABOVE it.
They think that it is radiation necrosis but they send pictures to neuroradiologist and if he agrees, they treat my mom to decrease symptons of necrosis.
Im worried rahat there is a recurrence because original tunor looked same in contrast mri.
Has any of you faced something Similar? I would love to know whag are the next steps.
I hate this fucking cancer. I cant lost my mom, she means me everything.
Can you tell your ecperiences? What can i do? We live in Skandinavia so there is nothing more Useable left than normal treatment protocols. There is no optune, clinical trials että.
I hate this. Help me. Im already grieving that i will lost her to this shitty ting. Shitty SOMETHING.
thanks, i needed to vent.