Behcet's Diagnosis
Hello all!
I’m trying to get a Behcet's diagnosis and am having the hardest time. My PCP and dermatologist both believe that I have Behcet's based on my symptoms, but they are waiting for me to have an outbreak so they can take a biopsy. Unfortunately, I don’t get sores that often anymore and when I do, there’s never an appointment available.
So, how else can I get a diagnosis?
I’ve been to the rheumatologist and she was awful. She literally said "You don’t have a sore, so I can’t do anything for you".
This can’t be right because logically, every single person with Behcet's wasn’t diagnosed from a biopsy. There has to be another way.
I left that rheumatologist and have an appointment with a new one in 5 weeks.
This illness has destroyed my life. Some days I can’t walk, most days I can’t breathe, I can’t exercise, my body is weak, my heart is in bad shape, etc …
Everything else has already been ruled out and I’ve had tests done that show I have inflammation…
Does anyone have any advice on how to get this diagnosis so I can FINALLY get treated?