Plenty of factors can influence how our seizures are triggered and influenced over time. Impressive how well epileptics learn to adapt and succeed, lifestyle, choices, etc. Exercises that feel good and help you manage everything you do are ones to keep consistent! Anyone have favorite workouts? I like to switch yoga/pilates to add resistance and make sure every 30 min is enough to feel next day.
Hors d'oeuvre I couldn’t pass up! RSO coated B12 gummy! Beautiful day just got even better 🤗 comment what’s your fav wakeup treat?
We can’t always manage these exercises as easily as we used to. Accomplishing a few reps everyday will make for a great feeling! Some sore muscles can feel super refreshing when you know it’s from getting these moves in! Let’s comment on any tips you have for a regular, productive workout. 🤗🎉🏋🏻♀️
Eventually we have to work for the motivation to get good exercise! Blame it on whatever you choose (meds, others, side effects) but the importance is that we can see the benefits of staying active, and keep it goin! Please share anything that relates! Fav exercise, motivation, or something to avoid? Thanks! 😊
Shout out to all of us getting things done and still having fun!!!
Let’s get some success stories! Great times that did NOT go wrong because of a seizure!
Hey to all out there! Timing is a significant influence on having a good workout. For some of us, the time being consistent is most important, to make sure anything gets done, but ever catch yourself thinking “There’s something I’ve got to be doing better to get the right outcome”? This article got me thinking, maybe a later workout can make a difference in a good way. Protect Memory with 30 min before bed
Any advice for others trying to keep fitness a priority while maintaining epilepsy, appreciated! Blessed week for all 🤗
Never truly know what tomorrow will bring. Some days, a lil one might start the day with more stress than usual, then have to admit to getting a note home yesterday. 🤯 Time for a talk!
Today’s post is about how a talk is sometimes easier to have during stretches! Workout endorphins probably activate faster when we’re younger, and the fact is, you don’t always have to sweat to get a good result! Pain relief and a better mood can be hard to come by, so trying different activities (stretching, walking, swimming, etc) might truly contribute for you! 🎉
Options are available for location, intensity, duration, for an always good workout! As long as we stay on top of an effort for any fitness routine, lasting results are guaranteed 🎉
Workout plans make a difference, but a real bonus is days when motivation is NOT happening for that hour long sweat session. Even some warm up exercises get blood flowing, and it’s better than eating!
This catamenial seizure thing won’t ever be predicted, for me anyway, so I would LOVE to hear from any ladies out there who are confident about how their monthly cycle works with seizure activity. Just starting to catch on about how times when my cycle isn’t regular will correlate to more OR LESS than usual seizures 🤯 Deciding to make some major diet changes and hopefully long term will be less seizures by ‘27. Share any recommendations here for gaining steady control over your epilepsy
This example came up as PT homework. Try it! Core moves are great for quick workouts to make a difference 💪
“One supportive hypothesis proposes that ß-endorphins released during exercise inhibit epileptic discharges”. Numerous studies show no change, or even a decrease in seizure frequency during 4-12 week aerobic exercise programs. Clearly not enough studies done to reach a conclusion that influences our neurologists to encourage exercise as a treatment. Bummer. Anyone else want to document your own journey? Take notes on how our seizure frequency, severity corresponds to exercise (how often, what activity) and educate our own care team! Hoping if one of us takes this to our doctors, someone might get them proud of their patient and have a positive influence for someone else’s care! Epileptics will still manage greatness 🤗
https://www.sciencedirect.com/science/article/pii/S1525505010000181
Amazed at the perspective we get from this chart! All the activities with little to no risk to us convinces me that I’ll never use my seizures as an excuse. No more can we let ourselves stop doing anything and everything just because we might have a seizure. Good lookin out fellow warriors! 🤗🎉💪
“significant benefits for general health and longevity, including the modifying of synaptic plasticity, reducing the frequency of seizures and neuroinflammation, and improving memory and cognitive function, which is especially important in PWEs.” We’ll build and maintain a healthy body (brain included), heal faster even after TCs, and have the best memory possible! Ever get a chance to workout on an EEG? Go for it! Seeing accurate data about your brain’s reaction to physical activity is valuable. We all benefit from individual evaluations to earn personalized treatment, especially the VNS/RNS/DBS patients. Thanks for joining r/Epilepsy_Universe!
https://www.tiktok.com/@primevideo/video/7142214609901194542?lang=en
Throwback day for us all 🤗
Appreciate and admire all epilepsy advocates! I know there can be more of us that share our success and increase positive change for others! Article here that stood out because it triggered a realization how tempting it is to trust your neurologist. Countless times, newly diagnosed epileptics are essentially shut down from our favorite activities (swimming, biking, hiking) or advised to cancel plans (party, travel). I understand the medical community is prioritizing safety, but WTF?! Mental and emotional wellbeing is also priority! Maintaining an important aspect of our lives by staying active is impressive, since the vast majority of medical professionals would be the easiest excuse for starting a downward spiral, initiated by “safety” through dropping routine physical activity that we often don’t realize plays a crucial part in a balanced lifestyle. For many epileptics, balance is a challenging, but essential aspect of achieving controlled seizures. Good luck and prayers for all of us surviving with seizures!
inspiration article
Getting fit, and staying that way, is easier said than done! Making it happen is a must, to be the best we can be, so a nice msg here to remind how good it will feel to take initiative, and how making any changes, no matter how significant, will add up over time to make a big difference!
***Lower stress
Stabilized brain activity
Better chance of not getting cardiovascular/mental health issues
Better sleep***

The heat wave has been causing many of us trouble, inspiring discussions of how to stay hydrated while always keeping in mind the importance of balance. You can always get too much of a good thing, especially water. For me it’s about a gallon / day. If I go over that amount, then we’ll have to be cautious of unintended consequences like frequent restroom use and possibly induced seizures.
During a workout I’ll rarely drink anything besides water. On busy workout days, protein drinks to substitute a meal is useful too. Since days have been hot lately, Gatorade/electrolyte drink have been a good one to take out for playground time or running errands. Any suggestions for how to best stay hydrated?
How many times have you had a perfect workout plan? All ready, dates, times, content worked out, then next thing you know…….time goes by!!! If exercise isn’t a legit priority, chances are it’s easily overlooked. Solution? Fuck the plan! Make use of what resources you have, and starting with stretches, or something low intensity, that won’t require an immediate shower, to hopefully develop a habit!
On the flip side, procrastination is less likely for those who are signed up for classes or have a workout buddy. You know what works for you! Leave a comment for tips or Qs that might help anyone else decide if they want to try scheduled or impromptu workouts!