u/Mysterious-Eye5277

I post on here a lot and I’m so thankful for this community of people. 🫶🏼

I’ve had 3 uncomplicated flares between Oct and Jan. I was doing great for about 3mths after that. Now kicking myself for not having surgery while I was doing good and healed.

My 4th flare which is currently going on, landed me in the hospital for a few days. The Augmentin did not work this time 😞 I was released from hospital with a PICC line and was to receive 11 more days of antibiotic infusions to heal me in preparation for surgery.

Day 4 of them, the pain started back up again. I honestly could cry 😢 Just met with surgeon and waiting on CT and blood results. But the possibility of a bag now has increased 10 fold. I could kick myself for not doing it. I’m afraid this will push me into a bad depression. Just when summer and boating season is coming around too. I honestly just want to feel better and cry.

I hate that I’m so unfortunate that the 2nd time of taking Augmentin no longer worked. And that the strong IV antibiotic ertapenem isn’t working either It’s scary 😩

Well my 4th flare landed me in the hospital Ugh 😩

My first 3 were uncomplicated and first 2 treated with C/F But with the cipro, my anxiety was insane and heart rate sucked. Last 2 flares were with Augmentin. But obviously this time it did not work. Started out feeling better for a few days, but quickly became extremely sick. Felt so lethargic, no appetite and like I had the flu. Not to mention the lower abdominal swelling and pain, which I never had with first 3 flares.(usually in my descending colon under ribs) I could hardly button my jeans regardless of hardly eating anything. All these flares happened between last Oct and now.

So 2 days in hospital getting IV antibiotics and now have a picc line inserted and continuing to get IV antibiotics everyday for next 11 days to get ready for surgery.

Dr doesn’t want to take any chances of me flaring again especially knowing Augmentin did not work.

Won’t lie, I’m nervous 😬 I know it’s time. But he keeps saying it’s going to be a ‘big surgery’ and does recommend 6wks off work 😳So the anxiety in the back of my mind makes me wonder if he has worries what is going on internally too is worse than expected……

I’m thankful though for all the positive surgical outcomes I’ve read about on here though. They are helping me a lot right now

Hello

Well on my 4th flare in 7mths….ugh This time though the pain is significant in my lower abs

My stomach is so swollen too. Hurts to sneeze or cough and walk. I typically have issues in my descending area, so left side under ribs. I did not have a CT this time given I’ve had so many already and Dr doesn’t want to expose to too much radiation. So want to see if anyone has had this kind of pain and lower abdominal swelling?

And yes going in next week to discuss surgery 🙌🏼

Anyone have surgery for DVT in their descending colon? My surgeon said that because of this combined with my sigmoid colon as well, I will have to get a lot of length removed. They can ‘do it’ but it will be a tough resection 😬 whatever that means

I had 3 flares in 4mths and currently 4mths out from last flare……yay. But I do get pains here and there and bowels have been bad lately too 😩Surgeon left it up to me as to when I want to get surgery, but he said he would wait as long as I can if possible. I know the risks both ways. But I’m more worried about the amount of colon they will have to remove.