The three to five years mark has been around for the last 20 years.
Some biomarkers sound promising and have been repeatedly abandoned
I understand the subgrouping comes first.
I mean, people are killed by psychiatry, it's kind of urgent
One year ago I've experienced a thunderclap headache, which brought me from moderate to very severe in 60 seconds. It cause me to have extreme POTS, whereas I didn't before. I've had a brain - not spine - mra /mri and there was not fluid found, but still they found "broadened Vilchow Robin spaces in the basic ganglions". This finding was not there 4 months earlier in an mri I did.
I have different kind of tinnitus but not the "blocked ear" or underwater ones, not severe headaches, no pressure on the skull base.. But I still wonder if I have a cfs leak and if it plays a part in my severity.
I'm laying flat 24/7 so I can't compare laying and sitting up. Sure, sitting up makes me extreme dizzy, but that could be also from the flat laying or pots.
Doctors don't know sh*t and I can't move anyway.
I really wonder why there aren't many many more studies aiming to the brain. I really don't know the role neuroinflammation plays in the chain ( i'm pretty sure it's vicious cycle).
Still I would expect pet scans and neurotransmitter function to be a much more central object of research. It doesn't seem to be the case and i am deeply troubled. All we, people lying in dark rooms, deserve answers and a better quality of life. Brain fog, sensory sensitivities etc are so prominent. However, research concentrates on "fatigue", a very very vague term. What's going on?
I see people saying that a cure can be found tomorrow, that AI is the future, that insulin was an overnight breakthrough ( it was 1920s guys clinical trials were not a thing back then).
We live in 2026, we have three-fase trials. Realistically speaking, for anything to reach the average patient it will take at least 10 to 15 years. Even repurposed drugs.
Why do people keep saying that a breakthrough might come tomorrow? It won't affect us anyway