Sitting in the Hospital
I hope this is ok, I’m just looking for support.
I’m sitting in the hospital, it’s been Sunday for 7 minutes here and I started off Thursday at a different hospital. I’m not officially diagnosed yet but they suspect Behçet’s. I’ve had mouth sore flares since my late teens/early 20s and I’m 37 now. I’m both relieved and terrified presently. After so many years of being told to eat less acidic food and more yogurt and that I was fine, I feel like my health fell completely apart now.
They haven’t told me officially, or given me a plan yet. I’m missing work and that’s scary as a mom and generally in this economy.
If anyone would like to share thoughts, or what to expect, or anything, I’d appreciate it. It does seem like this is the likely diagnosis based on all my symptoms. I’m not scared of having a condition, I’m scared of being bad at managing it. My brother is a diabetic so I’m big on disability advocacy and thriving despite chronic illness, I just didn’t think it would be this for me now. I guess no one is prepared, right?
Well, if you read this thanks, and I hope your health is good today.