4 years of non-diagnostic AIH
Hi, I am a 20 M and currently taking tacrolimus 9mg/day for the past 6 months. This all started from a random blood test completely unrelated. No family history related to liver stuff. Waiting for a result on a genetics blood test.
Previously tried various concentrations of Prednisolone and then moved to azathioprine. Side effects of prednisolone were awful so I had to stop but long story short, its been a bit of a rollercoaster on the blood tests and still no medication to have taken my LFT to a normal level. Taking URSO for the entire 4 years and still continuing.
I used to get no side effects but now i experience random itching very often which i take meds for too.
Two biopsies; neither had cirrhosis and just mild inflammation of liver.
Thought tacrolimus was working until my LFTs shot up today and I am lowkey losing my mind.
I still struggle to even look at my blood tests every time. I have never drunk alcohol, smoked or done drugs. I go to the gym 4 times a week and used to run so my health has been on top for the entire time, currently 73kg and 5’10, like wtf am i supposed to do and why have I been blessed with ts? My diet is also healthy, no snacks just a solid amount of protein.
Recent ALT levels roughly a month apart:
322, 268, 252, 247, 134, 199
I have taken a huge mental toll which I still do not think i have fully recovered from this, seen a few therapists but still cant get these feelings of fear away properly. I really just want this entire thing to piss off but I dont know what to do.