Thank you, r/ehlersdanlos! Your participation helped make this research possible.
📢 Excited to share some research news!
Last year, I shared my doctoral research study with this community, and many of you generously volunteered to participate. I wanted to come back to say thank you and share an update.
I'm a doctoral candidate in Nutrition at Texas Woman's University, and I'm honored to share that the first phase of my dissertation has been accepted for presentation as a poster at the Dysautonomia International Annual Conference in Houston this week.
Poster Title:
Gastrointestinal Symptom Burden and Functional Impact in Primary Autonomic Disorders
This study examined how gastrointestinal (GI) symptoms affect daily functioning and quality of life in people with primary autonomic disorders. Many participants also reported living with Ehlers-Danlos syndrome, highlighting the close overlap between these conditions.
I've also submitted a manuscript based on this study to the peer-reviewed journal Clinical Autonomic Research. In addition, we recently completed data collection for Phase 2, which is investigating metabolic, nutritional, and body composition alterations in people with primary autonomic disorders.
This research truly would not have been possible without the support of communities like this one. Thank you to everyone who participated and shared your experiences.
After the conference, I'll return to share a plain-language summary of the findings and answer any questions about the study. Thank you again for helping advance research in this area.