Some weird things that have seemed to go hand in hand with my cancer:
No libido. None.
Extreme constant thirst. And I get sicker, when I'm dehydrated which can take like, 2 hours.
Restless legs from hell
No inner thermostat*
Just, out of curiosity. Thanks
Know its a Longshot, but you're my people. I do not want to live in an apartment. Why? They ALL have dogs. Credit isn't great- but that's what almost a decade of cancer will do to you. I can promise: the bills will be paid, and there will be no dogs. My husband just got a raise, its doubling his salary with the City, he's in med school and receives money from that, I also receive disability, which will contine. And we need and want, to get out of my moms rat and mold infested home for my health, and everyone's sanity. Looking for a 3/2.
* all I need is a miracle *
Thanks for reading.
Hello all, I'm diagnosed with grade IV glioblastoma. I'm 46. I'm having trouble with insomnia again, so I thought I'd stop by, and share my story. I knew in 2018 when I got shingles on my head twice in one year- something else was very, very wrong. I'd been experiencing balance problems, personality changes, headaches, vomiting. A feeling deep down, I was dying. The second trip to the ER for shingles on my head- I told them, this is a symptom. Not the disease- so they did a c/t scan of my brain.
7 years went by. Doctor after Doctor dismissed me as mentally ill and or drug seeking. Finally I yelled at my GP, who for 2 years did nothing, and I mean nothing to help me . And pain. Was I in pain. He sends me to a neurologist who orders a MRI. We get halfway through the procedure and the radiologist emerges to tell me, he will want contrast. I knew right then from the look in her eyes. ( At the next appointment with neurosurgery, I find out that c/t scan showed a large mass in my left frontal lobe- and was even noted by the radiologist. I've endured 7 years of medical neglect, gaslighting, dismissal...so in 2018 someone could have saved me )
A day later, on Friday- he wants me back Monday. So I go. And its brain cancer. Advanced, brain cancer, at that. So that December 2024, full resection. February, a revision. By April I couldn't take any more, and called the local hospice to ask what I need to do to be put on it. They ask my diagnosis and said they'll be here in a few hours. So I get on hospice, but the hole in my head remains a problem with constant infections. They order another MRI. No new evidence of disease. Which, yay right? I still feel like I'm dying. They take me off, saying my GP "PROMISED " to bridge my medications. He did not. So...acute withdrawal of benzos and opiates at the same time. I have my first and only seizure. Go to neurosurgeon. He's thrilled at my MRI. And very pissed at my GP. Got me into their pain management team right away. They also say, well you need a neurologist to prescribe your headache medication- bc we're nuerosurgery. Go to new neurologist bc my previous one has retired. He treated me just like my GP. Getting red in the face from a normal discussion. He ends it with, if you want this medication, find another neurologist! That appointment gave me a headache for 2 days. And get this, the guy writes in his notes this medication I have been on since I was 19, caused the seizure. The one medication I still had/ was on. I suspect, so other Dr's would also refuse to give it to me.
But, some bright spots: I have pain management. The hole in my head is finally closed after 16 months. Thanks to wound healing every week for 2 months. I can shower again, washing ( gasp ) my hair.
I'm sure I've left out some things, but just wanted to share my story- the good and the bad.
I highly recommend c*nnabis oil, and I don't regret my splurge on an Avocado wedge pillow AT ALL. Who wants to lay on something that causes cancer trying to heal from cancer? Anyhow, I'm here 9 years in.
Anyone else? I thank cannabis oil for any appetite at all. But still.